Gillian Anderson (Scully X-Files) NFInc. CoffeeCakes.com join to support Neurofibromatosis (NF)

CoffeeCakes.com joins NF Inc. and Gillian Anderson to Benefit Those Affected by Neurofibromatosis

In 2005, when the Founder and President of our company's son was diagnosed with Neurofibromatosis, we formed a mutually beneficial charitable partnership with Neurofibromatosis, Inc. (NF, Inc.) and Gillian Anderson. A percentage of all of CoffeeCakes.com proceeds are donated to this charitable organization, whose mission is to create a community of support for those affected by NF, through education, advocacy, coalitions, and supporting research for treatments and a cure. We are very proud of the work NF, Inc. is doing and are very happy to be a part of this wonderful charitable organization. We are also excited about our partnership with Gillian Anderson, who has already done so much to help those affected by NF.

Join CoffeeCakes.com, NF Inc. and Gillian Anderson
(Agent Dana Scully from the X-Files, Lady Dedlock in Bleak House and Dr. Sara Zach in The Last King of Scotland)
to help those affected by NF

Neurofibromatosis!
A Big Word!
Lots of syllables! Lots of problems!

Thank you for your support in the Fight against NF!

What is NF?
Neurofibromatosis (NF) involves the uncontrolled growth of tumors along the nervous system, which can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and death. It is the most common genetic disorder caused by a single gene. While not all NF patients suffer from the most severe symptoms, all live their lives with the uncertainty of knowing whether they too will be severely affected because NF is a highly variable and progressive disorder.

Did you know?
NF affects more than 100,000 Americans, making it more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington's Disease and Tay Sachs combined - though not as well known.

Effects of NF
A brief summary of possible problems from NF include: • Brain tumors • Spinal cord tumors • Pseudarthrosis or Scoliosis • Headaches • Deafness • Learning disabilities • Cancer • Pain • High blood pressure • Seizures • Tumors of the optic nerve • Deformities and Disfigurement • Blindness • Paralysis • Hearing Loss • Delayed or early puberty • Epilepsy • Hydrocephalus • Bone Deformities • Severe itching • Short stature • Psychosocial burdens

Please help us in our efforts to educate and raise funds for this very important cause!

Two distinct forms of NF:

• NF-1 affects 1 in 3,500 births• NF-1 gene is on chromosome 17• NF-2 affects 1 in 30,000 births• NF-2 gene is on chromosome 22 Affected parents have a 50% chance of passing on NF to each offspring. NF IS NOT contagious, a person is born with it.

Treatment
No cure exists for neurofibromatosis other than the surgery. Most tumors cannot be totally removed and may grow back.

Affiliated Sites
Check us out on The Official Gillian Anderson Website and the Neurofibromatosis, Inc. Website.

"I am proud to be a part of this wonderful charitable partnership we have formed in hopes of raising monies to help find a cure for NF, not only for my son but for all of those affected with Neurofibromatosis".

-- Sherry Comes, President & Founder CoffeeCakes.com

Links & Resources: To learn more about Neurofibromatosis:

Neurofibromatosis Fact Sheet

Understanding NF1

Gillian is NF, Inc.'s Honorary Spokesperson and she's also a Patron of the NFA Neurofibromatosis Association (UK).

Neurofibromatosis, Inc.

The Neurofibromatosis Association (UK)

Just Ask Reggie Bibbs:

Visit his awesome web site!

NF, Inc. Wrist Bands! (Package of 10)

Did you know that one in every 3,000 to 4,000 children born have Neurofibromatosis (NF) and that NF is one of the most common genetic disorders in the United States? NF is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. Raise awareness and show your support with NF, Inc. wrist bands! One side of the band is imprinted with the NF, Inc. logo, the other side is imprinted with the word "Care".

All proceeds from the sale of these bracelets go to support research and faimilies and people with NF. Learn more about NF.

Thank you for your support in the Fight against NF!

Due to the overwhelming popularity of NF, Inc. wrist bands these are no longer available. We expect to be able to offer NF lapel pins and NF branded travel mugs by the end of May 2008 so please check back soon!

NF Alien Kids T-Shirts by Gillian Anderson Kids Medium Size 10/12

Original Angelwear Art by Gillian Anderson (Agent Dana Scully on the X-Files)for the benefit of Neurofibromatosis, Inc. This Kids Size Medium 10/12 T-shirt is truly Angelwear as a percentage of all proceeds go to support those affected by NF.

The front features an Alien with a "NO NF" symbol in the center of the tummy, as drawn by Gillian Anderson (Scully) from the popular TV show, "The X-Files".

NF Alien Kids T-Shirts by Gillian Anderson (Agent Dana Scully on the X-Files)

NF Alien Kids T-Shirts by Gillian Anderson Kids Large Size 14/16

Original Angelwear Art by Gillian Anderson (Agent Dana Scully on the X-Files) for the benefit of Neurofibromatosis, Inc. This Kids Size Large 14/16 T-shirt is truly Angelwear as a percentage of all proceeds go to support those affected by NF.

The front features an Alien with a "NO NF" symbol in the center of the tummy, as drawn by Gillian Anderson (Scully) from the popular TV show, "The X-Files".

"When my son was diagnosed with NF1 it was a huge relief to be able rely on NF, Inc.
to help me get through the fear, sorrow and confusion I felt with this diagnosis".
-- Sherry Comes, President & Founder CoffeeCakes.com

Gillian Anderson (Agent Dana Scully from the X-Files, Lady Dedlock in Bleak House and Dr. Sara Zach in The Last King of Scotland), NF Inc. and CoffeeCakes.com join to support Neurofibromatosis (NF)

info@CoffeeCakes.com
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