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"When my son was diagnosed with NF1 it was a huge relief to be able rely on NF, Inc.
to help me get through the fear, sorrow and confusion I felt with this diagnosis".

-- Sherry Comes, President & Founder CoffeeCakes.com
CoffeeCakes.com joins NF, Inc. and Gillian Anderson to Benefit Those Affected by NF
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CoffeeCakes.com joins NF, Inc. and Gillian Anderson to Benefit Those Affected by NF
In 2005, when the Founder and President of our company's son was diagnosed with Neurofibromatosis, we formed a mutually beneficial charitable partnership with Neurofibromatosis, Inc. (NF, Inc.) and Gillian Anderson. A percentage of all of CoffeeCakes.com proceeds are donated to this charitable organization, whose mission is to create a community of support for those affected by NF, through education, advocacy, coalitions, and supporting research for treatments and a cure. We are very proud of the work NF, Inc. is doing and are very happy to be a part of this wonderful charitable organization. We are also excited about our partnership with Gillian Anderson, who has already done so much to help those affected by NF.



Join CoffeeCakes.com, NF Inc. and Gillian Anderson
(Agent Dana Scully from the X-Files, Lady Dedlock in Bleak House and Dr. Sara Zach in The Last King of Scotland)
to help those affected by NF



Neurofibromatosis!
A Big Word!
Lots of syllables! Lots of problems!


Thank you for your support in the Fight against NF!



Every Step Makes a Difference!


What is NF?
Neurofibromatosis (NF) involves the uncontrolled growth of tumors along the nervous system, which can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and death. It is the most common genetic disorder caused by a single gene. While not all NF patients suffer from the most severe symptoms, all live their lives with the uncertainty of knowing whether they too will be severely affected because NF is a highly variable and progressive disorder.


Did you know?
NF affects more than 100,000 Americans, making it more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington's Disease and Tay Sachs combined - though not as well known.


Effects of NF
A brief summary of possible problems from NF include: • Brain tumors • Spinal cord tumors • Pseudarthrosis or Scoliosis • Headaches • Deafness • Learning disabilities • Cancer • Pain • High blood pressure • Seizures • Tumors of the optic nerve • Deformities and Disfigurement • Blindness • Paralysis • Hearing Loss • Delayed or early puberty • Epilepsy • Hydrocephalus • Bone Deformities • Severe itching • Short stature • Psychosocial burdens


Please help us in our efforts to educate and raise funds for this very important cause!


Two distinct forms of NF:

• NF-1 affects 1 in 3,500 births• NF-1 gene is on chromosome 17• NF-2 affects 1 in 30,000 births• NF-2 gene is on chromosome 22 Affected parents have a 50% chance of passing on NF to each offspring. NF IS NOT contagious, a person is born with it.


Treatment
No cure exists for neurofibromatosis other than the surgery. Most tumors cannot be totally removed and may grow back.


Affiliated Sites
Check us out on The Official Gillian Anderson Website and the Neurofibromatosis, Inc. Website.



"I am proud to be a part of this wonderful charitable partnership we have formed in hopes of raising monies to help find a cure for NF, not only for my son but for all of those affected with Neurofibromatosis".

-- Sherry Comes, President & Founder CoffeeCakes.com



NF Links & Resources:

To learn more about Neurofibromatosis (NF): Resource:
10 Things Everyone Should Know about Their NF1 by Dr. Douglas R. Steward, MD Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Research, from the National Institute of Health in Bethesda, Maryland. 10 Things Everyone Should Know about Their NF1
Children's Tumor Foundation Ending Neurofibromatosis Through Research Children's Tumor Foundation
National Institute of Neurological Disorders Neurofibromatosis Fact Sheet
Harvard Medical School Center for Neurofibromatosis and Allied Disorders Understanding NF1
NF, Inc. is a national, tax-exempt, charitable organization whose mission is to create a network of support for those affected by NF, through education, advocacy, and coalitions, and by supporting research for treatments and a cure. Neurofibromatosis, Inc.
Gillian Anderson is NF, Inc.'s Honorary Spokesperson and she's also a Patron of the NFA Neurofibromatosis Association (UK). The Neurofibromatosis Association (UK)
Just Ask Reggie Bibbs, a place to talk, have fun and share ideas about NF Reggie Bibbs Web Site!


Recent NF Shows & Specials

To learn more about Neurofibromatosis (NF): Resource:
MTV Special "I Have NF" MTV Special "I Have NF"
Oprah "Living with Neurofibromatosis" Oprah "Living with Neurofibromatosis"

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Product InformationView Gift Tote & Other Gift Packaging Options
NF Travel Mug
NF Travel Mug


Free Shipping on this item!


We're proud to offer this stylish and functional 14 oz. tumbler, with its sleek stainless steel body and handle, and plastic liner. It features a skid-proof rubber bottom and a plastic thumb-slide sipper. Its best feature, though, may be the portion of each purchase that goes to help fund NF research and support families struggling with this pervasive, yet little-understood disorder.


Hand-wash only, not for the microwave. Measures 7" high and 3" wide.


The mug is imprinted with the following message
showing your support for NF:



Item #: NF0032

Product Highlights

Include Signature Custom Reusable Gift Bag :
Custom Gift Wrap :
Price : $12.95
NF Travel Tumbler
NF Travel Tumbler


Free Shipping on this item!


We're proud to offer this stylish and functional 14 oz. mug, with its sleek stainless steel body and plastic liner. It features a skid-proof rubber bottom and a plastic thumb-slide sipper. Its best feature, though, may be the portion of each purchase that goes to help fund NF research and support families struggling with this pervasive, yet little-understood disorder.


Hand-wash only, not for the microwave. Measures 7" high and 3" wide.

The mug is imprinted with the following message
showing your support for NF:



Item #: NF0031

Product Highlights

Include Signature Custom Reusable Gift Bag :
Custom Gift Wrap :
Price : $12.95
NF Alien Kids T-Shirts by Gillian Anderson Kids Medium Size 10/12
NF Alien Kids T-Shirts by Gillian Anderson Kids Medium Size 10/12

Free Shipping on this item!

Original Angelwear Art by Gillian Anderson (Agent Dana Scully on the X-Files)for the benefit of Neurofibromatosis, Inc. This Kids Size Medium 10/12 T-shirt is truly Angelwear as a percentage of all proceeds go to support those affected by NF.

The front features an Alien with a "NO NF" symbol in the center of the tummy, as drawn by Gillian Anderson (Scully) from the popular TV show, "The X-Files".

Item #: NF0020

Product Highlights

Include Signature Custom Reusable Gift Bag :
Custom Gift Wrap :
Price : $12.95
NF Alien Kids T-Shirts by Gillian Anderson (Agent Dana Scully on the X-Files)
NF Alien Kids T-Shirts by Gillian Anderson (Agent Dana Scully on the X-Files)

Free Shipping on this item!

Original Angelwear Art by Gillian Anderson (Agent Dana Scully on the X-Files) for the benefit of Neurofibromatosis, Inc. This Kids Size Large 14/16 T-shirt is truly Angelwear as a percentage of all proceeds go to support those affected by NF.
The front features an Alien with a "NO NF" symbol in the center of the tummy, as drawn by Gillian Anderson (Scully) from the popular TV show, "The X-Files".

Item #: NF0021

Product Highlights

Include Signature Custom Reusable Gift Bag :
Custom Gift Wrap :
Price : $12.95
Cure NF Wrist Bands
Cure NF Wrist Bands


Free Shipping on this item!


Sold in sets of 3 only.


Raise awareness and show your support! Imprinted with "Cure NF".


All proceeds from the sale of these bracelets go to support research and faimilies and people with NF. Learn more about NF.


Thank you for your support in the Fight against NF!


Due to the overwhelming popularity of Cure NF wrist bands we are currently sold out of these...we plan to have more available in September 2010 so please check back then! Thanks for your support for NF, together we will find a cure!

Item #: NF0010

Product Highlights

Send a Free Personalized Greeting Card with your gift. Select at checkout.
Include Signature Custom Reusable Gift Bag :
Custom Gift Wrap :
Price : $12.95
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